My Story, from our sister, Keitrah
My name is Keitrah and I have MCS.
While I am sorry, that you or any one else, has this debilitating illness,
I thank Jehovah that he has allowed our paths to cross. For a long
time I thought I was the only witness with this. It is good to talk
with others who do truly understand how we feel and how each
is able to cope. In the last few years, I have been to dozens of
doctors and spent thousands of dollars. There have been many
allergic reactions to medications that I have had to take to treat infections
etc. Also many emergency situations because of being
exposed to chemicals, usually fragrances. Many times the fragrances
caused the onset of an asthma attack.
At first I would just move around in the
Kingdom Hall to get away from those wearing fragrances.
Even though, my nose would burn like fire and my throat would
get raw and my air-way would begin to close up, I though I could
handle it, with medication. I didn't want to offend any one.
When I talked with the C.O.'s wife, she advised me to privately tell my
friends because they would not want me to be sick. Well that was
several years ago and I have been on an eye opening ride
ever since. I have learned so much about MCS and; about human nature.
As deathly ill as I have been at times,
nothing can compare to the hurt and disappointment caused by rude comments
and isolation from my spiritual family. I am a people-person
and I find this especially hard. We have had talks on local
needs about not wearing fragrances to the meetings. It was then suggested
we would have one section of K.H. to be fragrance-free.
I thought this was the answer to my prayers.
This would not work either. I even had a
sister tell me that my illness was causing division in the congregation!
I was stunned and crushed, because to me, causing division in the congregation
is next to sinning against the Holy Spirit. What an additional burden
to carry! There are those who have stopped wearing fragrances,
for which I am VERY appreciative. Most though, feel this is just
too big of a sacrifice. Some think this is all in the mind and besides
I should just get the meetings on the phone. We have only had this available
at our K.H. for about 6 months and since we don't have to use mikes,
no meetings with audience participation are picked up.
To make a very long story short, I
am able to get the meetings, most of the time, by sitting in the third
school. It does not have an air vent. My very supportive husband
(and Bro.) bought a large air cleaner to use during the meetings.
Since I have to go through the main hall to get to this room, I hold
my breath and move quickly to get there. Some times, with the aid of an
air supply, I am able to use the rest room at the Hall. At
other times it is so bad, I must leave and drive to a fast food restaurant
to use theirs' (and pray that no one has smoked in there.)
Then I drive back, hold my breath, cover my nose and move quickly to the
third school so I can enjoy the rest of the meeting.
Since we do not use mikes except from the
platform, we could not hear any comments in this room until my husband
bought inter-coms. He plugs them in for us each meeting.
Now the brothers have allowed us to use a mike that wasn't
being used and I can comment and give talks from the third school.
I am thankful for this. There are glass windows so I am able to see
the speaker and others. I am very appreciative of the few who speak or
wave to me. My husband and I work in service together. I can no longer
meet for service with the group and I cannot emotionally handle waiting
out-side on the steps.
I try to find something positive about every
thing I experience, sometimes it is very hard and at other times I don't
have the strength to care. I have learned a lot about human
nature, and how to be less judgmental, and that while it would be wonderful
to have supportive friends, our real strength must come from our dear Father,
Jehovah.
Please know that you are in my prayers.
Please remember me in yours, as we all work to cope and put Jehovah first
in our lives.
Your sister,
Keitrah McAlister
Email Keitrah
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